ROYAL INAUGURATION OF NEW INSTITUTE
HERALDS FRESH HOPE FOR VICTIMS OF MND
QUEEN TO VISIT SHEFFIELD FOR OPENING OF NEW RESEARCH CENTRE
The first Institute for Motor Neurone Disease will be inaugurated by HM the Queen and the Duke of Edinburgh in Sheffield on 18th November.
The £16m Sheffield Institute for Translational Neuroscience, SITraN, is a world-class research centre lead by Professor Pam Shaw who, with her team of nearly 100 international scientists will work towards solving the mysteries of MND – one of the world’s most under researched diseases for which currently there is no cure and very low options of treatment.
There are 40,000 patients who suffer from MND in Europe, 6,000 in the UK alone. The life expectancy of a patient is about three years and only ten per cent live over five years from diagnosis. A key feature of this condition is the speed of the progression of the symptoms.
Four years ago a team of dedicated Patrons set up the Sheffield Institute Foundation for MND (SIF) The have raised with the help of the University of Sheffield £16million.
SITraN will more than double the current research capacity in Sheffield and will allow new and existing programmes of research to be developed and extended. It will bring laboratory studies into the clinic where new research will be applied to the patients after being cleared by the appropriate committee of safety of medicine (MHRA).
Professor Pamela Shaw, MBBS MD FRCP FMedSci, commented:
“SLA is one of the world’s ‘orphan diseases’. For too long it has been neglected and received inadequate research funding. The opening of the Institute will hopefully be a step towards advancing our understanding of the disease and making life easier for sufferers.
“Having assembled the building, research equipment and a world class research team, we now need to work on raising the funds for the programmes of research within SITraN and we intend to make our Patrons and supporters proud of their investment.”
If you want to help this research work, contact the Foundation Secretary at irene@irbeard.net
For a medical dossier with information on MND, SITraN and case studies please contact the SITraN press office
Professor Shaw is available for press meetings in London on Tuesday 16th November. Please contact the press office for appointments.
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Notes to editors:
For more information, please contact Eileen McGuinness at the SITraN press office on 0113 398 4012/07909 685924
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2 comments:
On behalf of all the patron's of The Sheffield Institute Foundation I would dearly like to thank Don & all his crew of the Talisker Bounty Boat expedition of David, Chris and Quilter,for their brave efforts to raise money and awareness, for this great cause.and to all the generous people that donated and who have followed the BBE.
Once the SITraN Institute is open We will still need in the region
£1 million per year to maximize the research programmes capacity of the new SITraN building, so if you would like to sponsor a research program or part sponsor one please get in touch with us through our foundation secretary: irene@irbeard.net
Please watch this blogg for future Auction's of memorabilia of the Talisker Bounty Boat expedition 2010.
"Good Luck" to you all for the future, It's been an absolute pleasure been the Moderator of this website,
Cheers Stuart xxx
It was important to get a research center there.
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